Enhancing Equitable Care in Genetic Counseling: Perspectives on Disability
This educational training course centers the voices of individuals with disabilities and their family members to reimagine how disability is taught in genetic counseling. Through community collaboration and first-person video narratives, we aim to deepen understanding, challenge bias, and advance justice, equity, diversity, and inclusion in genetic counseling education.
Course Sneak Peek
Take a look at the six-module course and explore the key goals of each section designed to enhance disability-informed care in genetic counseling.
Module 1- Terminology, Communication, and Considerations
Goal: Learn to define terms, apply, and communicate appropriately when it comes to working with individuals who identify with having a disability.
Module 2: Disability Rights Movement
Goal: Understand the history, activism, and policy changes that have shaped disability justice, while recognizing the ongoing fight for equity, inclusion, and human rights for people with disabilities.
Module 3: Frameworks of Disability
Goal: Explore how societal attitudes, environments, and daily life experiences shape the well-being, identity, and inclusion of people with disabilities.
Module 4: Lived Experience: Stories from the Community
Goal: Deepen your understanding of disability through first-person perspectives, fostering empathy, respect, and more person-centered, informed approaches to care and advocacy.
Module 5: Navigating Family Dynamics
Goal: Learners will be able to recognize and thoughtfully navigate complex family dynamics in genetic counseling encounters by applying disability-informed, culturally humble communication strategies that center the perspectives of individuals with disabilities while supporting families with differing beliefs, emotions, and decision-making styles.
Module 6: Disability-Informed Genetic Counseling in Practice
Goal: Integrate disability-informed perspectives into every stage of the genetic counseling process including case preparation, contracting, history-taking, patient education, and psychosocial support, to foster more inclusive and responsive care for individuals with disabilities.
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