Project References

American Psychological Association. (n.d.).Guidelines for choosing words to describe people with disabilities. APA. https://www.apa.org/pi/disability/resources/choosing-words

(2015, September 9).Live la dolce vita with Michael Kors this fall. https://www.bustle.com/style/live-la-dolce-vita-with-michael-kors-this-fall

Mayor’s Office for People with Disabilities. (2021, December).Disability-inclusive terminology guide. City of New York.

National Center on Disability and Journalism. (2015, September 17).Terms to avoid when writing about disability. https://ncdj.org/2015/09/terms-to-avoid-when-writing-about-disability/

National Disability Authority. (2022, June).NDA advice paper on disability language and terminology. Government of Ireland.

Rahman, L. (2019, July).Disability language guide. Stanford Disability Initiative.

Agaronnik, N., Campbell, E. G., Ressalam, J., & Iezzoni, L. I. (2019). Communicating with patients with disability: Perspectives of practicing physicians.Journal of General Internal Medicine, 34(7), 1139–1145. https://doi.org/10.1007/s11606-019-04911-0

Center for Disability Studies, University of Delaware. (2011).Effective communication for health care providers: A guide to caring for people with disabilities. https://www.cds.udel.edu/wp-content/uploads/2017/02/effective-communication.pdf

(2023, May 5).Simple communication strategies for disability care. Credihealth Blog. https://www.credihealth.com/blog/simple-communication-strategies-for-diasbility-care

Northeast ADA Center. (2016, October 13).Eight tips for communicating with a patient who has a disability. Cornell University. https://northeastada.org/resource/eight-tips-for-communicating-with-a-patient-who-has-a-disability

S. Department of Justice, Civil Rights Division. (2014).ADA requirements: Effective communication.https://www.ada.gov/topics/effective-communication/

Centers for Disease Control and Prevention. (2020, September 16).Common barriers to participation experienced by people with disabilities. S. Department of Health & Human Services. https://www.cdc.gov/disability-inclusion/barriers/index.html

Gréaux, I., Ali, A., Frawley, P., Robinson, S., & Trollor, J. N. (2023). Barriers and facilitators to equitable healthcare for people with intellectual disability: An integrative review.International Journal for Equity in Health, 22(1), 144. https://doi.org/10.1186/s12939-023-02035-w

Krahn GL, Walker DK, Correa-De-Araujo R. Persons with disabilities as an unrecognized health disparity population. Am J Public Health. 2015 Apr;105 Suppl 2(Suppl 2):S198-206. doi: 10.2105/AJPH.2014.302182. Epub 2015 Feb 17. PMID: 25689212; PMCID: PMC4355692.

(2022, August 29).Obstacles to equitable health care: People with disabilities face access barriers, bias, and cost burdens. https://www.publicsource.org/obstacles-equitable-health-care-people-with-disabilities-access-bias-cost-report-2/

Rimmer, J. H. (2022). Addressing disability inequities: Let’s stop admiring the problem and do something about it.International Journal of Environmental Research and Public Health, 19(19), 11886. https://doi.org/10.3390/ijerph191911886

(2023, March 3).6 common barriers faced by people with disabilities. https://valuecare.org.au/6-common-barriers-faced-by-people-with-disabilities/

https://www.cdc.gov/disability-and-health/articles-documents/disability-and-health-data-now.html

American with Disabilities Act. (n.d.).Introduction to the Americans with Disabilities Act. ADA.gov. https://www.ada.gov/topics/intro-to-ada/

Disabilities Studies & Programs at Temple University. (n.d.).Disability rights timeline. Temple University Institute on Disabilities. https://disabilities.temple.edu/resources/disability-rights-timeline

National Park Service. (2020, July 8).Disability history: The disability rights movement. U.S. Department of the Interior. https://www.nps.gov/articles/disabilityhistoryrightsmovement.htm

New York Times. (2020, July 22).How the Americans with Disabilities Act gave the largest U.S. minority its rights. The New York Times. https://www.nytimes.com/2020/07/22/us/ada-disabilities-act-history.html

(2024, March 19).How do disabilities impact daily life and activities? Also. https://alsoweb.org/nonprofit-blog/how-do-disabilities-impact-daily-life-and-activities/

H2H HomeCare. (2023, November 6).How intellectual disabilities affect daily life. H2H HomeCare. https://www.h2hhc.com/blog/how-intellectual-disabilities-affect-daily-life

Hub Sociology. (2023, September 12).The social model of disability (with 30 important points). Hub Sociology. https://hubsociology.com/the-social-model-of-disability-with-30-important/#google_vignette

Medical News Today. (2023, June 29).The social model of disability: Definition and examples. Medical News Today. https://www.medicalnewstoday.com/articles/social-model-of-disability#definition

Absolor, J. L. (2023). The lived experiences of persons with disabilities in the workplace: A phenomenological study. International Journal of Social Science and Human Research, 6(3), 1571–1581. https://doi.org/10.47191/ijsshr/v6-i3-31

Gloria, D. S., Pelayo, E. T. C., & Castro, R. (2024). Lived experiences and support needs of students with disabilities: A phenomenological approach to achieving SDGs 3, 4, 10, and 11.SDGs Review, 4, e02578. https://doi.org/10.47172/2965-730X.SDGsReview.v4.n04.pe02578

Smith, E., Sumner, P., & Powell, G. (2025). The lived experience of people with intellectual disability in community settings: A comparison of self-reports and staff reports.British Journal of Learning Disabilities, 53(2), 259–271. https://doi.org/10.1111/bld.12629

Everett, J., & Vassallo, P. (2025). Lived experience and the politics of care: Disability, inclusion, and everyday life. European Journal of Public Policy & Society, 18(2), 210–226. https://doi.org/10.1332/17442648Y2025D000000060

Neely-Barnes, S. L., & Dia, D. A. (2008). Families of children with disabilities: A review of literature and recommendations for interventions.Journal of Early and Intensive Behavior Intervention, 5(3), 93–107. https://doi.org/10.1037/h0100425

National Institutes of Health. (2015).Family functioning and child development. https://www.ncbi.nlm.nih.gov/pmc/articles/PMCxxxxxx

(2023). Navigating family dynamics for adults with disabilities.https://www.eviancare.com/blog/navigating-family-dynamics-for-adults-with-disabilities

Psychology Town. (2024). How disability impacts family relationships and resilience.https://psychology.town/psychosocial-issues-in-disability/disability-impact-family-relationships-resilience/

(2024). 9 ways disability and family intersect.https://mydiversability.com/blog/2024/9/30/9-ways-disability-and-family-intersect

Number Analytics. (2023). Navigating family dynamics with disability.https://www.numberanalytics.com/blog/navigating-family-dynamics-with-disability

Lifka, J. (2023). The impact of disability on family dynamics and relationships.https://jonslifka.com/post/the-impact-of-disability-on-family-dynamics-and-relationships

Accreditation Council for Genetic Counseling. (2023).Practice-based competencies for genetic counselors. https://www.gceducation.org

Agency for Healthcare Research and Quality. (2020).Use the teach-back method: Tool #5. https://www.ahrq.gov